Las preocupaciones de los pacientes españoles con enfermedad inflamatoria intestinal medidas con el cuestionario RFIPC

Abstract

Background and objectives: Concerns impact the quality of life for patients with inflammatory bowel disease (IBD). We attempted to identify the concerns of IBD patients in our practice, and to assess the applicability of the Rating Form of IBD Patients Concerns (RFIPC) questionnaire to Spanish patients. Patients and methods: One hundred and thirty-one patients seen in our practice filled out the Spanish version of RFIPC. The questionnaire’s reliability, validity, and discriminating power were analyzed. Results: The total score was 46.93, with a standard deviation (SD) of 21.475. Primary concerns included: “having an ostomy bag”, “effects of medication”, “developing cancer”, “energy level”, and “uncertain nature of disease”. Female patients scored higher on total RFIPC and on most items. Cronbach’s alpha was 0.924. A good correlation was seen between two consecutive answers for 37 patients; the Spearman’s coefficient was 0.842 (p < 0.001), and the intraclass correlation coefficient (ICC) was 0.775 (p < 0.001). Correlation was also found between RFIPC and both the IBDQ-32 emotional domain (0.413, p < 0.001) and anxiety scale (0.543, p < 0.001). Conclusions: The RFIPC questionnaire may be administered to Spanish patients.