Prioritization of therapy uncertainties in Dystrophic Epidermolysis Bullosa: Where should research direct to? an example of priority setting partnership in very rare disorders
- Davila-Seijo, P.
- Hernández-Martín, A.
- Morcillo-Makow, E.
- Lucas, R.D.
- Domínguez, E.
- Romero, N.
- Monrós, E.
- Feito, M.
- Carretero, L.
- Aranegui, B.
- García-Doval, I.
Revista:
Orphanet Journal of Rare Diseases
ISSN: 1750-1172
Ano de publicación: 2013
Volume: 8
Número: 1
Tipo: Artigo